Motor rehabilitation, in particular physiotherapy, is one of the pillars of care for people with CP.
The place of motor rehabilitation (physiotherapy, occupational therapy, psychomotricity) is essential in the care of children and adults with PC.
In an international context of assessment of care leading to evidence-based medicine which has become a guide for the quality of treatment, only a few isolated publications, mainly from Anglo-Saxon countries, exist. They report a low to moderate level of evidence of the different approaches of motor rehabilitation. To date in France there is no recommendation of good practice for motor rehabilitation to which to refer.
Responding to a strong expectation of families in France
Little information is available (literature, associations...) on the point of view of the people affected and their families. Nevertheless, some families and advocacy groups report difficulties in access to adapted motor rehabilitation, leading to a perception of territorial differences in care.
To formalize the need felt by the families, the Fondation Paralysie Cerebrale led a multi-disciplinary working group to elaborate a research project aiming to gather the views of the people with CP and their families in order to better understand the care received, the perceived needs, the priorities and the expected improvements for motor rehabilitation.
The work of this group resulted in a national survey : the ESPaCe survey (Enquête Satisfaction Paralysie Cérébrale).